“Their oldest son had just died. When I visited the Bengtson family two years ago Michelle was nursing her husband Jim and their youngest son Austin, before leaving for work. When she returned they would be waiting for her care. But there was nothing she could do to reverse the fatal course, for halting a killer illness there is little hope. Huntington runs on the male side of the Bengtsson family, it is lethal and it rages more and more aggressively for every new generation. After years of frustration, researchers believe a new frontier might be opening in treating Huntington’s disease.
When I return two years after my first visit Jim just passed away, half a year before that Austin died in Huntington as well.”
-Pieter Ten Hoopen